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Blogs > JohninTracy > The Lunatic is on the Grass!

Living with Frontotemporal dementia  

JohninTracy 59M
10 posts
3/31/2020 7:35 am
Living with Frontotemporal dementia

Last week I received news that the doctors finally think they know what is going on with me, After months of testing and probing they have diagnosed me with frontotemporal lobar degeneration (FTLD). What is this you ask....

Frontotemporal dementia is an umbrella term for a group of uncommon brain disorders that primarily affect the frontal and temporal lobes of the brain. These areas of the brain are generally associated with personality, behavior and language.
In frontotemporal dementia, portions of these lobes shrink (atrophy). Signs and symptoms vary, depending on which part of the brain is affected. Some people with frontotemporal dementia have dramatic changes in their personality and become socially inappropriate, impulsive or emotionally indifferent, while others lose the ability to use language properly.

Frontotemporal dementia is often misdiagnosed as a psychiatric problem or as Alzheimer's disease. But frontotemporal dementia tends to occur at a younger age than does Alzheimer's disease. Frontotemporal dementia often begins between the ages of 40 and 65.

Signs and symptoms of frontotemporal dementia can be different from one individual to the next. Signs and symptoms get progressively worse over time, usually over years.
Clusters of symptom types tend to occur together, and people may have more than one cluster of symptom types.

In frontotemporal dementia, the frontal and temporal lobes of the brain shrink. In addition, certain substances accumulate in the brain. What causes these changes is usually unknown.
There are genetic mutations that have been linked to frontotemporal dementia. But more than half of the people who develop frontotemporal dementia have no family history of dementia.
Recently, researchers have confirmed shared genetics and molecular pathways between frontotemporal dementia and amyotrophic lateral sclerosis (ALS).

There's currently no cure or specific treatment for frontotemporal dementia. Drugs used to treat or slow Alzheimer's disease don't seem to be helpful for people with frontotemporal dementia, and some may worsen the symptoms of frontotemporal dementia. But certain medications and speech therapy can help manage symptoms of frontotemporal dementia.

Needless to say this has been a lot to take in and process.

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